Wednesday, November 30, 2016

Shipt Grocery Delivery - A Caregivers Life Saver

Going shopping is virtually impossible for me. When I do get a break, the last thing I want to do is more household chores..... Taking my dad to the grocery store is a nightmare for many reasons. His butt gets very sore in his wheelchair if he's in it for more than 20-30 minutes. He gets bored, then agitated. I can't push a cart and push a wheelchair, and he isn't able to operate the power carts.... Long and short, Thank Goodness they brought Shipt to Michigan!




You order groceries online. They deliver them to your house.
Easy Peasy!

You choose the delivery time and just wait for everything to get there!


It's a convenience so it is of course slightly more expensive then going to the grocery store. Membership it $99/Year (they now offer smaller terms) and shipping is Free as long as you've ordered $35 worth of groceries

Want to try it out? Click Here for 2 weeks free + a $10 credit on your first delivery!





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Dealing with a Fall Risk patient - At Home

The biggest challenge with my dads stroke is that he has anosognosia, an unawareness of his condition. As I type this we are 8.5 months post stroke and he still does not know he is disabled.
He thinks he works, drives, walks, etc. etc. I have signs hanging all around the house, which he ignores because "those are old"

So I live in constant offense

Overtime I've found ways to prevent falls, we've only had 2 at home thankfully, and that was all it took to adapt.

His bed is equip with the longest bed rail I could find, which covers nearly the whole length of the bed. We also use a roll belt restraint, so he can roll around and toss and turn, but he can not get up. Well.... With some effort he can and has gotten it off, but that's why I also have a video baby monitor and bed alarm as well. It may seem extreme, but, after 1 midnight fall and trip to the ER, this is what we have.







Outside of the bedroom is a little more tricky. I keep the video monitor on him at all times so if I need to do dishes or just get away from him for a minute I can still see if he's trying to get up. For his wheelchair I use a gait belt fastened in the back to buckle him into the chair. He can still get it off, but I can get to him before he does. On the couch, we have a power recliner which I just cut the power off using a power strip he can't reach. We also have this clip on fall cord, like the safety cord you would use on a treadmill, if he moves to far it will pull off and an alarm will sound. Finally, not that he uses it, we have a call button for him to press when he wants to get up.









If you have any home fall risk prevention methods I'd love to hear about them! Preventing falls in patients who already have brain injuries is crucial. All of our progress could be undone with one little slip.




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Friday, September 23, 2016

{Panic Attack} My Second Nervous Breakdown

My second nervous breakdown came about 1 month into being home. So after living in a hospital then rehab facility for 2 months, I moved him into my aunts house (she has dementia) where we have full time help. My initial assumption was he would be walking by the time we got home so all they would have to do is keep an eye on him.

Yea that didn't happen

He was an agitated and aggressive mess the first few weeks. For his safety I had to keep him restrained to his wheel chair which pissed him off. Despite a bed rail & bed alarm he managed to get out of bed and get semi-seriously hurt (not sure if this was the fault of the overnight caregiver) so then I had to start sleeping at my aunts on a couch in addition to be here all day every day.

I gave up my job, my hobbies, my friends - To care for this new hateful combative and physically abusive person who was so mentally incapacitated he didn't know any of this was going on.

One day, I'm sure again due to lack of sleep - I lost it.

He kept going on and on about my aunt needs to go to the bathroom.
We had just taken her, he saw her on the toilet (she uses a bedside commode) and kept pulling all her things off the table and pulling the table out from her (she's late stage dementia wheelchair bound) and after about 10 times telling him we just took her I just started screaming at him. I was enraged enough to scare my brother into calling half the family over. Prior to their arrival I ended up on the floor sobbing uncontrollable unable to catch my breath - All whilst my dad is still calling me stupid and trying to get my aunt to the bathroom (he's in a wheel chair too...)

My brother kicked me out of the room and took over with my dad. Amazingly he was able to calm him down, the family members got there, and my xanax kicked in. My aunt, the one who saved my ass the last time this happened, stayed the night so I could go home and get a good nights sleep - and then we resumed the normalcy which is my crazy life.

Lessons learned... Sleep is essential. I'm only 31, I've pulled plenty of all nighters, drunken nights out having to be up early the next day, but, none of those were in combination with the amount of stress, pressure, and depression of this new life. Staying up all night to make sure he doesn't fall out of bed was doing nothing but increasing the likely hood of me having some health disaster. Next, Sometimes you have to walk away. It's very hard for me to grasp that I'm talking to someone who's missing a good portion of their brain - Because he's cognizant and smart on so many other levels, I expect him to understand what I'm saying when I say "She just went to the bathroom" Tag team another family member in, it seems sometimes he's just plain ole' sick of listen to me all day long, and needs someone else to tell him to stop.

Finally, it's okay to loose it, you're human. Should I have been screaming at him at the top of my lungs, no probably not - But I did tell on myself to his psychologist who told me just that, you're only human, just try better next time and gave me some diversion/distraction tactics.

The next four months would yield less and less of these crazy events leading me to lose my shit, that or I've just learned to cope better....



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Friday, September 16, 2016

How Amazon Subscribe & Save, Saved my Life

So prior to my dad's stroke I was also caring for my aunt who has dementia. We had full time caregivers, and I managed all her medical needs, grocery shopping, meal prep, etc. When my dad had his stroke all that went into a shit-storm....

http://amzn.to/2cfNZWe


I made due while he was in the hospital, but then I found this magical thing called Amazon Subscribe and Save. I can set commonly used household necessities such a toiler paper and coffee to just automatically ship to the house once a month (or however often) and I don't even have to think about it! Pretty much everything you can dream of is on there except produce, which I use services like Door to Door Organics and Shipt for.

Basically, I never have to leave the house / when I do get to leave the house I can do things that are actually fun - And not have to worry about household crap like grocery shopping! The prices are quite comparable to traditional store prices and if you have a prime membership you get it in 2 days!

You can browse subscribe and save eligible items here or just search in the top search bar for "toilet paper subscribe and save" Below is a list of our common household items.





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Sunday, September 11, 2016

Transitioning to Home After Stroke - 12 Must Have Home Care Items

Things get real when it's time to go home. Depending on the level of your loved ones disabilities, you need to prepare for this as far in advance as possible, and if you're hospital/rehab is like ours - They aren't going to be all that helpful. They will set you up with your initial equipment order which most likely will be a wheel chair and/or walker and that's about it.... They will order the home care which you should absolutely take even if you think you don't need it, it's another set of hands/eyes coming to your house with ideas and resources and at this point your insurance deductible & max out of pocket is most likely met, so its free.

The coming weeks and months are going to be very busy for you, I would highly suggest an Amazon Prime subscription. Everything you need will mostly likely be cheaper on there anyway, and with prime you get it delivered in 2 days. You will constantly be thinking of things you need and not have time to go to the store... I've linked below the items I found myself needing right away at home.




Cloth Diapers
If you're loved one is incontinent I highly suggest cloth diapers, particularly for night time. In the beginning my dad would wake up constantly wet through-out the night, which meant I got not sleep. When I switched from disposables to cloth, he started sleeping through the night. Cloth Diapers are made in a way that the skin touching layer dries quickly so you don't feel wet. There are many kinds available on Amazon and they are super absorbent. Plus, disposable diapers are very expensive! These pay for themselves.

Toileting Aids
You're going to need a bedside commode, not necessarily for bedside, but it makes it much easier for getting on and off the toilet due to the hand rails, they do have simple toilet hand rails, but I find the ability to have a commode that you can adjust the height on depending on the level of difficulty getting up and down more comforting. For men, if you want something at bedside I would suggest a urinal system with bag vs the little urinal bottles you can get at the drug store.It's just more convenient.

Bed Pads
Don't waste time/money with disposable bed pads, if nighttime incontinence is involved, just get the washable reusable bed pads. Unless your loved one is prone to breakdown and bed sores these are not a good option.

Bed Restraints
I made the mistake of assuming a bed rail and bed alarm would be enough to prevent a fall, but it only took 1 trip to the ER due to a caregiver not getting there in time for me to make the decision that a bed restraint was necessary. The SkilCare RollBelt I purchased is something he can't very easily get out of, but can still roll around in bed. If you're loved on is a fall risk, I would suggest just doing it right away. My dads first/only fall out of bed and onto a dresser missed his corotid artery by only centimeters. 

Baby Monitors
When we first got home, I purchased only a regular old baby monitor with the plan of only needing this when he's asleep. I soon after purchased a video baby monitor so that I could be in another room while still being able to make sure he isn't getting up and going to fall. I suggest digital audio sound monitors and after trying several video monitors landed on the Motorola MBP853, while it has many flaws it was the only with all the features I wanted.

"Diaper Bag"
It only took one poop accident in public for me to realize I was not at all prepared for this new life, the next day I began carrying a backpack with all the things we could potentially need whilst out and about. Diapers, Wet Ones, Kleenex, Magazines to keep him occupied, Etc. Etc. Etc.... 

Pill Organizer
Recovering from a stroke, especially a severe one, there are mostly likely a lot of pills involved. My dad has has about 22 things to swallow a day (mostly vitamins) and making him to that all in one shebang is cruel so I got a 4x day pill organizer.

Warehouse Membership
Warehouse Shopping has been a lifesafe, I can go out once a month and get almost everything we need. Especially groceries. Our local Sams Club has so many options for fully cooked and prepared food I can a months worth of meals out of one trip to the club with very little effort. Click Here to sign up and get a $10 gift card!

Ipad
This is a pricey one, but if your loved one needs serious cognitive rehabilitation I would highly, HIGHLY, suggest an ipad. There are a plethora of apps available. What they get in rehab is never going to be enough. You have to supplement at home and handing them an ipad with pre-made exercises takes a lot of stress off of you.


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